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Daughters and sons as caregivers for their demented and non-demented elderly parents. A part of a population-based study carried out in Sweden

Stockholm Gerontology Research Center and Department of Clinical Neuroscience and Family Medicine, Division of Geriatric Medicine, Karolinska Institute, Stockholm, Sweden, Correspondence address: Wallis Jansson Stockholm Gerontology Research Center Box 6401 SE-113 82 Stockholm Sweden Tel: +46 8 690 58 06, Fax: +46 8 33 52 75

Margareta Grafström

Stockholm Gerontology Research Center and Department of Clinical Neuroscience and Family Medicine, Division of Geriatric Medicine, Karolinska Institute, Stockholm, Sweden

Bengt Winblad

Stockholm Gerontology Research Center and Department of Clinical Neuroscience and Family Medicine, Division of Geriatric Medicine, Karolinska Institute, Stockholm, Sweden

The study focuses on adult children (n = 81) having the main responsibility for parents with dementia (study group). They were compared with children (n = 102) of non-demented parents (reference group). The children were interviewed about burden experienced. The interviews also secured information about the children's co-operation with the informal and formal network and their willingness to remain as caregivers during the progression of the disease or ageing process. The results showed that the daughters reported feeling more affection in their caregiving role than the sons. About one third of the participants in the study could not get relief from someone else. Eighty-nine per cent of the children in the study group and 76% of the children in the reference group were not willing to care for their parents in the family home during the progression of the disease, even if they were employed as caregivers.

Key Words: dementia • caregivers • relatives • adult children • caregiver burden • family-based care • social support • formal care • population-based study

Scandinavian Journal of Public Health, Vol. 25, No. 4, 289-295 (1997)
DOI: 10.1177/140349489702500412


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