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Scandinavian Journal of Public Health
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Are hospitals also for relatives? A survey of hospitals' activities regarding relatives of cardiac patients

Nina Konstantin Nissen

National Institute of Public Health, Copenhagen, Denmark, nkn{at}niph.dk

Mette Madsen

Institute of Public Health, University of Copenhagen, Copenhagen, Denmark

Mette Kjøller

National Institute of Public Health, Copenhagen, Denmark

Susanne B. Waldorff

Department of Organization, Copenhagen Business School, Copenhagen, Denmark

Ann-Dorthe Olsen Zwisler

National Institute of Public Health, Copenhagen, Denmark, Copenhagen Trial Unit, Centre for Clinical Intervention Research, Rigshospitalet, Copenhagen University Hospital, Capital Region, Denmark

Aim: Patients and their close relatives both feel the burden of cardiovascular disease. Relatives of heart patients experience lower quality of life and increased mortality than the general population and relatives of patients with other diseases. Nevertheless, knowledge on health services aimed at relatives of patients with cardiac diseases is sparse. This study aimed to survey the prevalence of health services for relatives of cardiac patients in Denmark. Methods: We surveyed activities offered by Danish hospitals to the relatives of cardiac patients. Data were obtained from an Internet-based survey and 50 of 55 invited hospital departments participated. Results: Almost all departments offer activities to relatives of cardiac patients, but only one-quarter have activities specifically aimed at supporting relatives. Large departments offer activities for relatives more often than smaller departments. Participation rates for relatives are generally low, and the departments experience numerous barriers in providing activities for relatives of heart patients. Conclusions: Danish hospitals focus very little on relatives of cardiac patients, and this seems to be due to several factors, including lack of resources, lack of interest and knowledge among staff, and practical and psychological barriers among patients and relatives. More research is needed on health services concerning relatives of cardiac patients, regarding both the prevalence of activities and barriers to these.

Key Words: Cardiac disease • relatives • social support • spouses

Scandinavian Journal of Public Health, Vol. 36, No. 8, 827-831 (2008)
DOI: 10.1177/1403494808093330
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